Disease Registries
Patient and disease registries are widely used to generate data that help physicians and patients make better treatment decisions for patient care. They gather data on what different treatments are used and the outcomes of those treatments. Registries also gather the information that will hopefully improve the standard of care for future patients. By tracking information on a group of patients and outcomes over time, the registry can provide clues as to what is most likely to work given a patient’s condition.
The RESONANCE Patient Registry
Recurrent pericarditis is a difficult disease to manage and there are many questions on how to best make treatment decisions. RESONANCE is a 5-year study that plans to enroll 500 patients who have recurrent pericarditis. Kiniksa is gathering the data that are hoped to better inform doctors and their patients as they manage their disease, for both current and for future patients. We are currently enrolling and please click the link below to find if you qualify.
Giving A Voice To People Living with Recurrent Pericarditis
Dr. John Petersen, Cardiologist, Swedish Heart & Vascular Institute, discusses the importance of registries. As recurrent pericarditis is a rare disease, the information available is limited. To help fill this gap in knowledge, Kiniksa Pharmaceuticals developed the RESONANCE Patient Registry with input from people living with recurrent pericarditis, patient advocacy group leaders, and experts in the field.